On the 11th January 2009 we were blessed by the birth of our beautiful son Sebastian. The dream quickly turned into a nightmare as 15 hours after his birth Seb was diagnosed with a congenital heart defect (CHD) called Tetralogy of Fallot which, if left untreated, would mean he wouldn’t see his 2nd birthday.
Seb started to become ill earlier than expected and, at just four months old, the decision was taken by the surgical team at the Freeman Hospital to perform emergency surgery. After six hours in theatre, a rollercoaster week in Paediatric Intensive Care Unit (PICU) and four weeks on Ward 23, we finally got to take our boy home. Unfortunately Seb will require further open heart surgery within the next couple of years and again when he is an adult.
The events of 2009 have spurred us into charity fundraising mode, by setting up Seb4CHUF to raise money for the CHUF (Children’s Heart Unit Fund); to show our gratitude in any small way that we can. We, like so many other CHD families simply cannot do enough to say THANK YOU to the Freeman Hospital for saving our son’s life!