Children's Charity for the Freeman Hospital

Seb4CHUF – How we started

On the 11th January 2009 we were blessed by the birth of our beautiful son Sebastian. The dream quickly turned into a nightmare as 15 hours after his birth Seb was diagnosed with a congenital heart defect (CHD) called Tetralogy of Fallot which, if left untreated, would mean he wouldn’t see his 2nd birthday.

Seb started to become ill earlier than expected and, at just four months old, the decision was taken by the surgical team at the Freeman Hospital to perform emergency surgery. After six hours in theatre, a rollercoaster week in Paediatric Intensive Care Unit (PICU) and four weeks on Ward 23, we finally got to take our boy home. Unfortunately Seb will require further open heart surgery within the next couple of years and again when he is an adult.

The events of 2009 have spurred us into charity fundraising mode, by setting up Seb4CHUF to raise money for the CHUF (Children’s Heart Unit Fund); to show our gratitude in any small way that we can. We, like so many other CHD families simply cannot do enough to say THANK YOU to the Freeman Hospital for saving our son’s life!

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Comments on: "Seb4CHUF – How we started" (3)

  1. Thank you for your lovely story it made me cry. Our little 16 week granddaughter will find out on Thursday the date of her operation at the freeman
    She has three heart defects and two holes one day I will find out the correct terminology for her illness

    You’ve done an amazing job raising all this money

    • Hi Jan,
      Thank you so much for your lovely message.
      I really hope your granddaughter is ok and wish your entire family all the love in the world. You will need each other over the coming weeks and months.
      We will forever be in the debt of those amazing people at the Freeman. Our fundraising is an attempt to somehow thank them and help others.
      Take care,
      Ivan

  2. Jan Hewiit said:

    Well done both of you
    This is staggering x
    Our little Fallyn had her operation and has been home since 13/12
    Like Seb she needs more surgery
    Fallyn is going to benefit from the playroom in time to come
    We have raised well over £500 in this short space of time and proud to do it x

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